cfouryw's avatarC4YW

C4YW is just a few weeks away, and we are excited  to see all of the strong, thriving young women who are planning to attend! Today the C4YW Blog is happy to introduce Emily Cousins, another young woman working hard to better herself and other survivors for her first entry! Check back  as Emily shares with us her insights on the studies of the environment and breast cancer. Be sure to visit the website and register for this year’s event in Seattle!

Emily Cousins

I was diagnosed with breast cancer when I was 32 years old and in the ninth-month of my first pregnancy. I urged my doctors to give me aggressive treatment because I wanted to live for my new baby. Since then, I have religiously done follow up exams, had screenings, and undergone biopsies. Now, 10 years later, I am considering removing my ovaries to reduce the amount of estrogen…

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Susan's avatarA4BC Founder's Blog

Today is World Cancer Day. Go to their website and take a peak.You can sign for a cancer free world as well as learn myths and truths about cancer. Click on: http://www.worldcancerday.org/wcd-home

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AFTER CANCER, HOW BIG IS THAT PROBLEM REALLY?

I think sometimes I get too frustrated with simple annoyances in life. A fight with big chain stores because they failed to update my membership discount card, or because another store failed to register my warranty plan for an expensive item three times, are these major or minor annoyances? Or how about that grandest of irritations to some of us—the automated response I get when I call a company and the fact that no matter how many options offered, none of them match the problem I need to solve—look idiots, if I’ve broken down to actually calling you rather than submitting a question via your website, odds are my problem is more complex than the simple options I can select by pressing a suggested number, and I need a human capable of thought, with problem solving & customer service skills, who understands that not all problems fit into the narrow categories offered by the automated voice. Argh, stuff like that just eats time and energy!

I mean, I’ve had cancer, so shouldn’t I be handling all disasters, large and small, with a beatific smile, calm assurance, and stuff like that?

Or, how about my preferred way of looking at it, which is, hey, I have a cancer card that doubles as a get out of jail free card. I get a free pass for the rest of my life on these petty things. Now, let me have my way!

Ah, sweet fantasies!

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BcomingFree's avatarBcomingFree

“It sucks and it’s going to suck, but try not to get so caught up that the good moments become poison too. Hell, if you have a good minute, congratulate yourself. Because, at this point, feeling like yourself even for a minute is magical. Over time, good moments become riddled with evil. In the moments you should be savoring, you spend time wondering how far you’ll fall this time. You feel alone. You realize how much your life has changed. So, what do you do? You pick yourself up and start to rebuild.”

At first I was like…well that’s depressing, but then I realized what they were saying, and it was right. Just thought I’d share.

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Why I Did Not Do Reconstruction, A 3-Part Problem

My reasons for not adding some flesh into my “crater” are equal, in 3 parts. By the way, I refer to it as the crater because when I look at it, especially when I see it in the mammogram or MRI images on my oncologist’s computer, that is exactly how it appears. Ever see one of those dormant volcanoes, the ones that look like mountains, but instead of going up to a peak that is a point, there is this little hollowed out well-type space at the top? Yeah, that is what I look like. I hate it. I wish my breast looked the way it did before; my breasts were pretty symmetrical, which pleased my OCD mind. Not beautiful, but they were the same as each other, and that was nice.

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But I have elected to post-pone, perhaps indefinitely, reconstruction for three equally big reasons.

Money

I’ve read some Canadian or English bloggers sort of “warn” us Americans that it takes a long time with “government health care” to get your reconstruction, when these women wanted it sooner. Let this be a gentle reminder that waiting a few months or a year for it is better than delaying it for several years, or maybe never getting it because of lack of money. That is a huge factor in my situation. I left my 9 to 5 right after my treatment ended because I hated it, and yes, I begrudgingly admit I got a lesson from cancer: life is too short to be miserable. If my cancer comes back and I face death, at least I will not have wasted my post-treatment life doing a job I hated and being around people I disliked intensely. So, I am starting my own business which is good, but I’m not going to get rich or anything. And what little money I get depends on me NOT being incapacitated due to surgery. So, if the other two reasons for not diving into reconstruction evaporated, it still just is not an option for the foreseeable future.

Fear Of Anesthesia

One of the worst cancer memories for me is that week recovering from the lumpectomy. It hit me harder than expected. I’d done so well with chemo, so little sickness, no low white counts, that the medical team thought I’d breeze through surgery. But I am just one of those people who cannot handle anesthesia, plus I was just so “beaten down” by all the chemo. I dread any future surgery. The memories of nausea from it are actually stronger than the ones I have of going through chemo! So, until that memory, that fear, subsides, I’m avoiding surgery.

The weird part is that it was recommended that I go back for the reconstruction, rather than have it during the lumpectomy, which does not seem to be the standard for other patients, since I am seeing or hearing of many women who are starting reconstruction while getting mastectomy. But I was told that since I was having radiation, my new “filling” should be NOT radiated. WTF? Oh well, whatever, nevermind.

In The End, How Much Difference Would It Make?

From the pictures I’ve seen of reconstructed breasts, the scars or lumpectomy or mastectomy are still visible. I also know I’d have no sensation in my fake nipple. Sure, I’d have the symmetry I miss so much. My breasts would look the same in a clingy shirt, which I have to avoid now, because the flatness and reduced size of my cancer breast is apparent in clingy shirts. But when I remove the shirt, I would know, I would see. No matter how much cosmetic work is done, the cancer would still be as evident on my body as the memory in mind.

So what is my alternate plan? Tattoo, baby! I get it in a couple of weeks. I went to an artist who specializes not only in cosmetic tattoos (eyebrows, covering burn scars, etc.), but super-specializes in breast reconstruction. I met with him a few months ago (scheduling and lack of money have been hurdles for me to not do this sooner), and I explained how I felt. I told him what I’d like to have instead, and he came up with a design that pleased me. I am excited—despite being a Gen X-er with a love of punk rock, I have no tattoos, this will be the first. I suspect it will not be the last.

YOUR LEGITIMATE RIGHTS

Found this on some other blog, NOT in reference to cancer, but it kind of fits, doesn’t it?

You have a right to need things from others.

You have a right to put yourself first sometimes.

You have a right to feel and express your emotions or your pain.

You have a right to be the final judge of your beliefs and accept them as legitimate.

You have the right to your opinions and convictions.

You have the right to your experience – even if it’s different from that of other people.

You have a right to protest any treatment or criticism that feels bad to you.

You have a right to negotiate for change.

You have a right to ask for help, emotional support, or anything else you need (even though you may not always get it).

You have a right to say no; saying no doesn’t make you bad or selfish.

You have a right not to justify yourself to others.

You have a right not to take responsibility for someone else’s problem.

You have a right to choose not to respond to a situation.

You have a right, sometimes, to inconvenience or disappoint others.

This is a huge issue, and it is scary it is not at the forefront of discussions with every woman. Women with breast cancer–regardless of their density–should know about this, yet, not all do. Why?

pinkunderbelly's avatarThe Pink Underbelly

A hefty thanks to my good friend AnneMarie over at Chemobrain for alerting me to this topic. She wrote this post about a newly minted law in New York. I’m purposefully ill-informed about such current events; I don’t watch the news and I cherry-pick which stories I follow because the local news is full of big-city sensationalism and the national news wears me out, particularly with the uptick in political/biparty bickering. When election time rolls around, I do some concentrated research on my local and national candidates, but don’t need all the buzzy asides about which congressperson is misbehaving or which serial killer is still at large or who eye-rolled whom. As my wise friend Amy Hoover says, I know about all the current events in my home, and that’s enough to keep up with.

The news of the new dense breast laws did catch my attention, though, thanks to AnneMarie…

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