Grateful for the REAL Tweets!

A GIGANTIC thank you to all participants of Saturday’s Tweetstorm and/or Thunderclap!

light

While we did not get #BreastCancerRealityCheck trending, we did make an impact. Over 3,000 tweets last Saturday, far exceeding last year’s 1,000! We couldn’t have done it without you!

Of course, we (@barbieslosingit, @bccww, @abcdiagnosis) keep checking in on the hashtag in Twitter, and we are encouraged to see everyone keeping it going, continuing to share all the realities of this horrible disease we share. By continuing to shine a light on these realities, we remind the world that the sanitized story repeated ad nauseam is FAR from the whole picture.

Keep sharing YOUR reality, don’t let anyone stop you. You are NOT being depressing, or merely complaining. You are telling YOUR truth, and letting others who may get sucker punched in the future with a diagnosis, that they will not be alone.

 

Advertisements

Let’s Go!

Now is the time, and the hour will soon be upon us. It is now up to you to make it happen!

What is the reality YOU want everyone to know?

I think about how the months from October 2010 to the end of 2012 were what I still call “the lost time”, because I was in treatment, and then dealing with depression and fatigue even after treatment ended in January 2012. An event from that time comes up in conversations, and I just don’t remember it–just one of the million little ways cancer still impacts me.

I think about how I celebrated the first time, somewhere in 2013, I was able to stay awake from about 7AM until the 11PM news without a nap (note I don’t say I got to watch the whole news program, I only made it to 11, ha ha).

I remember having insomnia, and reading to pass the night away, and found an article about how insomnia can cause cancer, which….gave me more insomnia.

I think about bigger issues, less personal stories, that are my personal pet peeves in cancer advocacy world. If I see one more BCAM tweet equating early detection with early prevention, I swear, my head will start spinning, Exorcist-style.

What are the realities YOU will share?

Flex those fingers hovering over keyboards and smart phones…

Get ready, get set….and tweet, tweet, tweet!!!

 

Ready…Set…

Tomorrow is the big day! There’s still time to sign up for the Thunderclap–if you already have, please ask your friends to join in!

We cannot say we’ve exactly “enjoyed” reading all the tweets/stories that ARE your personal realities. Because, well, it sucks that any of us had cancer, it sucks we have to do this reality check to counter all the fairy tale stuff out there. But there is a lot of clever humor in some of your tweets. But most importantly, these tweets and stories remind us all that we are not alone.

That said, we cannot say that we exactly “look forward” to all your tweets during the hour-long tweets storm (10amPDT/1:00pmEDT/6:00pmBST), but we look forward to all the witty, funny, sometimes sad, community-building that will take place.

Click on image to sign up for Thunderclap!

A Few Tips for Tomorrow:

While we all strive to get #BreastCancerRealityCheck THE trending hashtag for the hour (10amPDT/1:00pmEDT/6:00pmBST), we encourage everyone to use ONLY #BreastCancerRealityCheck in the tweets. Hashtags such as BreastCancerAwarenessMonth, ThinkPink, PinkIsNotACure are pretty well used!

Not going to be near social media at the appointed hour tomorrow? No sweat! Use Tweet Deck or some other dashboard application management tool and schedule tweets ahead!

Be real, be you. A reality check is about informing others what having this disease is REALLY like. We know some businesses will (again) see the hashtag and use it to shill pizza or something (yes, that happened). But that is not what this is about. Move beyond the dominate narrative, the crass cause marketing. Above all BE REAL.

See you tomorrow!

Y’all Rock!

We have reached our threshold of 100 sign-ups for Saturday’s Thunderclap. That means at 10amPDT/1:00pmEDT/6:00pmBST your–our–message will be sent out into the world:

“Breast cancer stories are NEVER pink fairy tales. ~1,430 die per day. Tweet your truth! #BreastCancerRealityCheck

Y’all who’ve signed up just ROCK!

If you haven’t signed up yet, you still can, and please do! The more of us there are, the louder will shall be.

cropped-for-tc-e1507082088791.jpg

But it won’t stop there!!

For the hour after the tweet happens, tweet the heck out of the #BreastCancerRealityCheck with YOUR dose of reality.

We WILL be heard!

Again, we cannot thank everyone enough for joining in, for chiming in. We especially thank our friends over at The Underbelly for helping us get the word out–your support is EVERYTHING.

All Hands On Deck!

Saturday is just a few days away–the day we want to get #BreastCancerRealityCheck trending!!

Have you signed up for the Thunderclap yet? If not, what are you waiting for? We need AT LEAST 100 people to sign up, or the automated tweet/Facebook post will NOT happen. So sign up, and get your friends to sign up as well!

And get your reality stories ready to tweet out on Saturday as well. What would you like to see different in Breast Cancer Awareness Month? Now is the time to demand that change!

for TC

Be Heard Above the Noise

Yesterday was a difficult day in America. To be honest, for the Ol’ Curmudgeon, everyday for the past year has been an overwhelming cascade of outrage after outrage. I’m stretched pretty thin, and admit–I don’t really “see” some of the Pink Nonsense that I recognize is irritating so many of you out there. See, I’ve seen it so much in the past 7 years that it seems like “old news”.

But I am reminded by so many of you–this is still VERY important. How can we expect to change the culture unless we keep up the pressure, unless we keep pointing out how wrong society gets cancer, unless we keep educating?

pinkerburn

There is so much going on, it is like a ongoing din in the back of the brain. I write this with ALL my media turned off (I usually have at least some music on), just pure quiet, and I still hear the din in my mind. I imagine it is like this for many of you.

But I will shout and be heard above the noise, both in my head and the stuff coming at us from every device we own.

This still matters, too. My–OUR–friends are STILL dying from mets breast cancer, and every damn October that just gets buried under a lot of pink fluff and smiley races. I just..can’t…I refuse to shut up about it. My resolve is stronger than ever. How about you?

Join @barbieslosingit, @bccww, @abcdiagnosis, and yours truly Saturday. Sign up for the Thunderclap and then tweet out your reality using #BreastCancerRealityCheck

Shout Down the Fractured Pink Fairy Tale

Join us for the Second Annual #BreastCancerRealityCheck Thunderclap campaign. In 2016 our message had a social media reach of over 200,000!

The #BreastCancerRealityCheck tweet: “Breast cancer stories are NEVER pink fairy tales. ~1,430 die per day. Tweet your truth!” will be sent out by the automated Thunderclap system at 10amPDT/1:00pmEDT/6:00pmBST on Saturday, October 7th from everyone who signs up.

Click image to sign-up for the Thunderclap!

The more people you sign up, the more ‘social media reach’ it gains as it will go out to all your followers–and maybe they will sign up and reach their followers, and so on…

Then There’s the Twitterstorm

After the automated Thunderclap tweet goes out on Saturday, October 7th it’s your turn to get tweeting!

For an hour, starting at 10amPDT/1:00pmEDT/6:00pmBST, please use #BreastCancerRealityCheck to FILL our timelines with info and personal stories that:

  • Move beyond superficial “raising awareness” to focus on more education and research that will SAVE LIVES
  • Dispel the myths about prevention and early detection
  • Reveal the candid realities of people (women and men) living with ALL stages of breast cancer
  • Provide less-known, harsh facts about secondary/metastatic breast cancer
  • One of Breast Cancer Awareness Month’s favorite ‘pink fairy tale’ messages is that early detection saves lives. But what most people still don’t know is 20-30% of all early stage breast cancer will become metastatic breast cancer. THAT is the killer.

You can do your part to help stop that killer. Sign up for the Thunderclap tweet campaign. Participate in the one-hour twitterstorm. And keep using the #BreastCancerRealityCheck hashtag for the rest of October and beyond!