And

Ron Weasley (Rupert Grint): One person couldn’t feel all that. They’d explode!

Hermione Granger (Emma Watson): Just because you’ve got the emotional range of a teaspoon…

                        –from Harry Potter and the Order of the Phoenix (2007 film), in which Hermione tries to explain all the emotions felt by Cho Chang, causing Cho to cry while Harry kissed her.

I started looking into (breast) cancer blogs in search of solace from the forced cheerfulness of the pink ribbon culture. I was lucky to find a few, like thepinkunderbelly, unafraid to point out the un-pretty and unpopular thoughts, feelings, and facts about cancer. But I follow other blogs about cancer, often finding good tidbits of info, and sometimes I see disturbing stuff.

It seems the majority of posts I see include “inspirational” quotes. Lately I have seen a few that are “encouraging”, but in a chiding and judgmental way. I will not reprint them here, for fear of offending my readers who might have posted one of these quotes. Hey I’ve even reblogged a few myself, the ol’ cancer curmudgeon doesn’t mind a bit of uplifting inspiration once in a while. But one I did not reblog stuck with me. It implied that people in bad situations have a choice: they can be and remain angry or accept their misfortune (getting cancer). In fact, it implies that one must choose between being angry or accepting. To this I ask, why can’t I accept my misfortune, deal with it AND still be miffed, annoyed, yes even angry about it?

I do not understand this drive or pressure to turn cancer patients into a nation of Ron Weasleys. I feel many things at one time, thank you very much. I especially don’t get it when the pressure comes from fellow cancer patients. A few months ago at a retreat another patient told me I need to just accept how things are, because I can’t be angry all the time. I bit my tongue, thinking, “maybe you can’t handle anger, lady, but it motivates me to do something”. Why on earth does everyone want to tell me how or what to feel? And, while we’re at it, what makes this judgmental behavior acceptable in our society (people like telling others, especially women, how to feel and even what to do—just look at shit people say to pregnant women or women with toddlers)?

My emotional range far exceeds that of a teaspoon, or a cup, or even a gallon jug. Maybe an oil tanker would be big enough for my emotions, because, unlike Ron, I am so capable of feeling more than one thing at a time. The health care professional who runs the cancer support group I attend is fond of the word “and”, as am I, because to not say “and” is soooo limiting.

Here are some emotions cancer made me feel (usually considered negative):

Anxious, Stressed, Scared, Apprehensive, Overwhelmed, Weary, Intimidated, Depressed, Angry, Upset, Frustrated, Annoyed, Disappointed, Pressured

AND

Here are more emotions cancer made me feel (usually considered positive):

Happy, Delighted, Confident, Strong, Powerful, Determined, Humorous, Compassionate, Inspired, Relieved, Eager, Enthusiastic, Pleased, Proud

I often felt any number of these, from both the negative list AND the positive list at the same time, in any number of combinations.  Being angry, stressed, AND depressed may cripple other people but it motivates me to speak out, demand better medical expertise in the world of cancer, better prevention, etc. I am angry I got cancer AND I am grateful I survive. I am stressed and depressed about the events of the past 24 to 30 months, AND I am inspired and eager to become an advocate for others who will follow me into Cancerland. I’m all of these things right now.

Now one last word about the issue of acceptance, which was part of the quote I read that set me off on a tangent to write this post. I can accept that I am angry. I feel anger AND acceptance for my situation. To those who lecture about “acceptance”, why can’t you accept me and my messy, passionate overflow of emotions, of which I feel all at once? Why is passion such a threat?

It’s Only Weird If It Doesn’t Work

This is the rare post from the ol’ Cancer Curmudgeon in that it is not cranky and complaining. I daresay it will border on hopeful and magical, maybe a little silly. Blame it on local pride, I OD’d on it watching the Raven’s celebration parade yesterday.

Despite my post of the Ravens logo minutes after their Super Bowl victory, I am not much of a football—or any sports—fan. In past years, my primary interest was just the half time shows, and of course, who doesn’t love the commercials. But during cancer treatment 2010-2012, I was hungry for distractions; books, TV, or any kind of pop cultural entertainment (bless Charlie Sheen in winter of 2011, the ultimate distraction). And the Super Bowl, the way it is the defining national event, especially fit the bill.

I’m Maryland born and bred, so my obvious allegiance is to the Baltimore Ravens. And as a bonus, the team name is a reference to one of the greatest poems of all time, written by one of the greatest American writers. A macabre poem written by a drunk who married his underage cousin doesn’t seem a likely inspiration for the name of team in a sport like American football. Guess that is why they were underdogs, another thing I like about ‘em!

During cancer treatment I became aware that the Ravens seemed to have a knack for getting almost to the Super Bowl, and would lose that final game that could send them there. For the past two winters I grumbled if only they would just win that last play-off game and at least get to play in the Super Bowl, that would be cool, I could live with that. So, when the season started last autumn, I kept an eye on the scores, something I’ve never done in my entire life!

Before I continue, indulge me in a small detour into my twisted mind, so the rest of this post will make even less sense and get weirder.

Weird Thing #1:

Long ago I read “Animals as Teachers and Healers” by Susan Chernak McElroy (whose blog I just discovered, hurray!). In the book (or perhaps the one she wrote right after that, I read them over 10 years ago) an interesting concept is discussed that essentially boils down to this: a cultural belief that the rooster crows because the sun comes up and the sun comes up because the rooster crows. No, it does not make any scientific sense, but it is a fun and interesting concept anyway. I know how the earth revolves around the sun, giving the illusion that the sun “rises” each day, regardless of any earthling’s behavior. I also know absolutely that if the rooster did not crow, the sun would not rise. Odd thing to come out of the mind of the cranky pants, atheist mind of the Cancer Curmudgeon, yes, but it is true, I believe it.

Weird Thing #2

Apparently, a theme of this year’s NFL season was fans and how they support their teams: “It’s Only Weird If It Doesn’t Work”. I did not know that until I saw a news segment of the same name, previewing that Stevie Wonder Super Bowl commercial and showing clips from Silver Linings Playbook, in which Robert DeNiro has his son (Bradley Cooper) or his son’s friend (an amazing Chris Tucker) hold the TV remote in one hand and an Eagles scarf in the other, slowly rubbing the scarf. The point of all this is that fans have these little “habits” that they believe will help “their” team win. The behaviors aren’t quite symptoms of OCD, but they certainly look like it. Hey, I have OCD tendencies and I am proud! And yeah, I wore my 2012 Ravens t-shirt from early Sunday morning to Monday morning—never ONCE removing it. Stop laughing, they won didn’t they?

Because my interest in following football started while having cancer, the two things became entwined in my mind. As the Ravens recently approached the final play offs once again, I approached my 6 month cancer check- up. I’d been doing well since my July check-up, much like the Ravens were beating the 49ers until half time. On January 14, the mammogram and ultrasound showed an “area” to monitor. I worried I might be in danger, that cancer was sneaking up on me again. After the black-out, the 49ers began to creep up on the Ravens, like my cancer. January 21, after this close shave, my visit with the oncologist tells me I’m still doing ok, status still NED. The 49ers crept up on the Ravens, but ultimately the Ravens persevered, and were victorious, just like me.

My next words may be crazy, brace yourself. It is just like the rooster crowing to cause the sun to rise each day.

My all clear from the oncologist earlier this month caused the Ravens to win, and conversely, the Ravens’ win means I will remain NED this year. No, it isn’t weird, because it’s working. And it is why this Super Bowl meant so much to a non-sports, non-superstitious person.

And now, the next post will return you to your regularly scheduled snark and crankiness.

Accurate!

drkdhoffman's avatarHealth Communications and Health Advocacy

“Patient blogs reveal the true extent of the impact of cancer on finances, work practices, family life…they offer a window into the lived experience of the patient.”

~Marie Ennis-O’Connor

marie-ennis

When you are 34 years old, lecturing and working in Public Relations and Marketing at a University, you aren’t thinking about cancer.  Yet in 2004, Marie Ennis-O’Connor suddenly had to.  Her life changed with her diagnosis of breast cancer.

In a recent post on the International Journal of Public Health website, this Irishwoman writes, “A cancer diagnosis is not just a single event with a defined beginning and end, but rather a diagnosis [which] initiates a survival trajectory characterized by on-going uncertainty, potentially delayed or late effects of the disease or treatment, and concurrent psychosocial issues that extend over the remainder of a person’s life.”

The uncertainty, delayed effect of the disease or treatment and the possibility of recurrence are all…

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BcomingFree's avatarBcomingFree

داخل نفسي هو المكان الذي أعيش فيه وحده كل شيء.

Inside myself is a place where I live all alone.

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cfouryw's avatarC4YW

C4YW is just a few weeks away, and we are excited  to see all of the strong, thriving young women who are planning to attend! Today the C4YW Blog is happy to introduce Emily Cousins, another young woman working hard to better herself and other survivors for her first entry! Check back  as Emily shares with us her insights on the studies of the environment and breast cancer. Be sure to visit the website and register for this year’s event in Seattle!

Emily Cousins

I was diagnosed with breast cancer when I was 32 years old and in the ninth-month of my first pregnancy. I urged my doctors to give me aggressive treatment because I wanted to live for my new baby. Since then, I have religiously done follow up exams, had screenings, and undergone biopsies. Now, 10 years later, I am considering removing my ovaries to reduce the amount of estrogen…

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Susan's avatarA4BC Founder's Blog

Today is World Cancer Day. Go to their website and take a peak.You can sign for a cancer free world as well as learn myths and truths about cancer. Click on: http://www.worldcancerday.org/wcd-home

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YES!!

YES!!

Finally joy for this Maryland native!

AFTER CANCER, HOW BIG IS THAT PROBLEM REALLY?

I think sometimes I get too frustrated with simple annoyances in life. A fight with big chain stores because they failed to update my membership discount card, or because another store failed to register my warranty plan for an expensive item three times, are these major or minor annoyances? Or how about that grandest of irritations to some of us—the automated response I get when I call a company and the fact that no matter how many options offered, none of them match the problem I need to solve—look idiots, if I’ve broken down to actually calling you rather than submitting a question via your website, odds are my problem is more complex than the simple options I can select by pressing a suggested number, and I need a human capable of thought, with problem solving & customer service skills, who understands that not all problems fit into the narrow categories offered by the automated voice. Argh, stuff like that just eats time and energy!

I mean, I’ve had cancer, so shouldn’t I be handling all disasters, large and small, with a beatific smile, calm assurance, and stuff like that?

Or, how about my preferred way of looking at it, which is, hey, I have a cancer card that doubles as a get out of jail free card. I get a free pass for the rest of my life on these petty things. Now, let me have my way!

Ah, sweet fantasies!

Image

BcomingFree's avatarBcomingFree

“It sucks and it’s going to suck, but try not to get so caught up that the good moments become poison too. Hell, if you have a good minute, congratulate yourself. Because, at this point, feeling like yourself even for a minute is magical. Over time, good moments become riddled with evil. In the moments you should be savoring, you spend time wondering how far you’ll fall this time. You feel alone. You realize how much your life has changed. So, what do you do? You pick yourself up and start to rebuild.”

At first I was like…well that’s depressing, but then I realized what they were saying, and it was right. Just thought I’d share.

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Why I Did Not Do Reconstruction, A 3-Part Problem

My reasons for not adding some flesh into my “crater” are equal, in 3 parts. By the way, I refer to it as the crater because when I look at it, especially when I see it in the mammogram or MRI images on my oncologist’s computer, that is exactly how it appears. Ever see one of those dormant volcanoes, the ones that look like mountains, but instead of going up to a peak that is a point, there is this little hollowed out well-type space at the top? Yeah, that is what I look like. I hate it. I wish my breast looked the way it did before; my breasts were pretty symmetrical, which pleased my OCD mind. Not beautiful, but they were the same as each other, and that was nice.

Image

But I have elected to post-pone, perhaps indefinitely, reconstruction for three equally big reasons.

Money

I’ve read some Canadian or English bloggers sort of “warn” us Americans that it takes a long time with “government health care” to get your reconstruction, when these women wanted it sooner. Let this be a gentle reminder that waiting a few months or a year for it is better than delaying it for several years, or maybe never getting it because of lack of money. That is a huge factor in my situation. I left my 9 to 5 right after my treatment ended because I hated it, and yes, I begrudgingly admit I got a lesson from cancer: life is too short to be miserable. If my cancer comes back and I face death, at least I will not have wasted my post-treatment life doing a job I hated and being around people I disliked intensely. So, I am starting my own business which is good, but I’m not going to get rich or anything. And what little money I get depends on me NOT being incapacitated due to surgery. So, if the other two reasons for not diving into reconstruction evaporated, it still just is not an option for the foreseeable future.

Fear Of Anesthesia

One of the worst cancer memories for me is that week recovering from the lumpectomy. It hit me harder than expected. I’d done so well with chemo, so little sickness, no low white counts, that the medical team thought I’d breeze through surgery. But I am just one of those people who cannot handle anesthesia, plus I was just so “beaten down” by all the chemo. I dread any future surgery. The memories of nausea from it are actually stronger than the ones I have of going through chemo! So, until that memory, that fear, subsides, I’m avoiding surgery.

The weird part is that it was recommended that I go back for the reconstruction, rather than have it during the lumpectomy, which does not seem to be the standard for other patients, since I am seeing or hearing of many women who are starting reconstruction while getting mastectomy. But I was told that since I was having radiation, my new “filling” should be NOT radiated. WTF? Oh well, whatever, nevermind.

In The End, How Much Difference Would It Make?

From the pictures I’ve seen of reconstructed breasts, the scars or lumpectomy or mastectomy are still visible. I also know I’d have no sensation in my fake nipple. Sure, I’d have the symmetry I miss so much. My breasts would look the same in a clingy shirt, which I have to avoid now, because the flatness and reduced size of my cancer breast is apparent in clingy shirts. But when I remove the shirt, I would know, I would see. No matter how much cosmetic work is done, the cancer would still be as evident on my body as the memory in mind.

So what is my alternate plan? Tattoo, baby! I get it in a couple of weeks. I went to an artist who specializes not only in cosmetic tattoos (eyebrows, covering burn scars, etc.), but super-specializes in breast reconstruction. I met with him a few months ago (scheduling and lack of money have been hurdles for me to not do this sooner), and I explained how I felt. I told him what I’d like to have instead, and he came up with a design that pleased me. I am excited—despite being a Gen X-er with a love of punk rock, I have no tattoos, this will be the first. I suspect it will not be the last.