Reliable Information Sources

My kingdom, my kingdom for someone who can provide me with a real answer, an answer I can trust.

During my recent electronic devices/internet connection woes, I learned that it is damn near impossible to get a straight answer, or talk to someone with some knowledge, or, in short, get actual useful information that would solve a problem. This is especially true in the world of electronics, apps, internet, and all that crap.

Actually, back up, that was true before. Several weeks ago I had an issue right here on WordPress. As I understand it, if there is a new post from a blog I follow, it should appear in my “reader” both on my laptop and in my phone’s app. I checked the blogs I followed and saw all these recent posts, whereas the most recent post in my reader was 2 days old. Trying to resolve the issue only led me, repeatedly, to the WordPress forum, where I was to post my issue and hope someone would answer.

No one ever did.

Luckily, the issue resolved itself, mostly. As I’ve struggled to regain all the apps I had on my toilet-drowned old phone onto my replacement piece, I’ve run into numerous problems, but I’m never sure where to turn. Do I contact the phone maker, or the app maker/service, or the phone service provider? And how do I contact, like, any of them?

Oh no, I must go to the forum.

I’m not knocking forums; actually I have seen some useful info on forums. But if what I need involves my account information, or if I simply do not possess knowledge of the jargon related to the problem (“what happens if I tap the house shaped button, second from the left..”, I actually once wrote those words, see it would be easier if I knew the name of the damn button), I need a real person, paid by the company.

As frustrating as all that it, it is not nearly as sickening as a couple of cancer-related (mis)information pieces I’ve read.

First, while trying ot hunt down some completely different information, I came across a tidbit on the website for my local TV news. The article referred to information from something called HealthDay News and it stated that “many ovarian cancer patients (are) denied by-the-book care”. Unfortunatley, due to either faulty info from the local news source or my ongoing internet connectivity woes, I could not access the original article. The gist of the article is that about 2/3 of ovarian cancer patients “don’t receive recommended treatment that could extend their lives”. If these patients do not get the care recommended by National Comprehensive Cancer Network’s guidelines, they risk dying within five years. Who is most likely to fall into this trap? Patients at low-volume hospitals, like in rural areas, you know, like where I live. Best of all, the article recommends that the patients themselves check out the National Comprehensive Cancer Network clinical practice guidelines on their own.

In essence, treat yourself. Granted, many of us when first diagnosed hit the internet despite all the advice to the contrary, and found out what we could. But I for one, did not do that thinking that the doctor was not giving me all the information I was supposed to have, was not following treatment guidelines.

Then, I see Scorchy’s post Me and My Shadow in which she talks about some information presented to her, and when she actually read the report provided by her doctor, he left quite a few things out.

So, let me see if I have this right. Buy the tech support, still have to send silly laptop back. Get cancer, but don’t get the recommended treatment, or the full story about the diagnoses. What are we paying these doctors for, exactly?


Author: Cancer Curmudgeon

Oct 2010 diagnosed with Stage 3, HER2+ Breast Cancer. Completed treatment Jan 2012. Waaaaaay over pink. Applying punk rock sensibility to how I do cancer.

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