Reciprocity and Respect

Long ago I reposted or tweeted some official-medical journal type article about how the warrior language can be damaging for many cancer patients. This was a report about a study on the issue, NOT some random blogger opinion piece. I got some comment or push back from someone, protesting that many folks found it helpful to be warriors, and they were tired of getting criticized for it.

It was weird because 1) I did not write the article, much less conduct the study and 2) I was merely posting it, not criticizing, and I did not find the language of the article to criticize the folks who do use the warrior language. Even weirder, it seemed like the victor claiming to be the persecuted to me—the warrior language is pretty pervasive and accepted as the social norm. Sure lots of bloggers post about their discomfort with the term, but it has not resulted in some cultural shift in which the word is used less, and folks identifying as warriors are in the minority. Cancer warrior is a commonly used term in society, in the media, in the Livestrong culture that still persists today.

The exchange with the person ended with the person saying something along the lines of if I don’t like it, don’t use it, but don’t criticize those who do. This was the weirdest part of all. Why? Because I don’t use it (so I did not need to be advised to not use it), but that NEVER stops others from using it to describe me against my will.

I’d largely forgotten about the exchange (I cannot even remember when it happened, certainly within the past year, and really have no idea which social media platform it all occurred on). But perusing some Facebook posts tonight, on National Cancer Survivors Day, I saw a few posts by bloggers who are not fans of the day, particularly some metastatic bloggers. I was shocked to read some comments on one post in which commenters flat out told the blogger she was indeed a survivor—any day she gets up she is a survivor.

Wow.

After all this time since my cancer experience began, I am still shocked at how disrespectful people can be. How dare this person force an identity on another, when the blogger, a woman with metastatic cancer, does not self-identify as a survivor? The gall of one person infringing on the wishes of another never ceases to amaze me.

I wish to be clear here. It is true, I do not like terms such as warrior and survivor and do not use them to describe myself. I have very specific reasons why I dislike them. If others wish to use them, fine. Everyone’s preference should be honored.

But I expect reciprocity—stop calling me words I will not use about myself. Everyone deserves this simple act of respect.

Addendum: Please know that I am speaking about ANY time someone labels me (or others) survivor against our wishes. Even if it is done gently, not in an attacking manner, it still is dismissive and patronizing.

Perhaps the reason I am so edgy about this is that when someone calls me warrior or survivor against my express wishes, it makes me think that they think I do not know my own mind. I do. The best analogy I can give is this: I never wanted children. From my teen years until my mid-30s, people would tell me–a grown woman–that I’d probably change my mind. I never did, I’m very happy with my choice. What makes people think they know me better than I know myself? I put up with it for too long on the not having children issue. I’ll be damned if I put up with it in CancerLand.

Advertisements

Author: Cancer Curmudgeon

Oct 2010 diagnosed with Stage 3, HER2+ Breast Cancer. Completed treatment Jan 2012. Waaaaaay over pink. Applying punk rock sensibility to how I do cancer.

13 thoughts on “Reciprocity and Respect”

  1. Jeesh, huh? What’s with people trying to bully their cyber sisters into feeling or thinking a certain way? I have some pretty strong opinions myself, but they’re mine, and I don’t expect everyone else to share them. I’ll tell ya, though, if there’s one form of cancer-verbage tyranny that is worse even than the survivor/warrior stuff, it’s the people who urge us all to be ‘positive.’ Don’t get me started…

    Like

    1. The funny thing was–I was used to the bullying in real life, and the lectures to be positive. I planned to escape that on the internet–which is probably why I reacted so strongly! It just makes me nuts–like when people tell me to calm down, it’s no big deal (about anything). Like, it is not for you to tell me what is or is not a big deal! I’ll just never understand–it bugged me as a child and bugs me now.
      Whoops I got fired up again…anyway, thanks for “getting”me!

      Like

  2. I like to think we are all quite passionate and sometimes get a bit over-zealous, no matter what words we use or how we choose to talk about our cancer experience. I try not to come across as being negative or judgmental, but as you know, I guess some think I do. And you’re right, it does get annoying when people try to force labels, certain behaviors, or whatever it is on us. Respecting the views of others always matters and it matters in Cancerland too.

    Like

    1. Nancy I thought that comment on FB was truly bizarre. I was flabbergasted. Then I clicked over to another’s page and saw someone tell the blogger that they are indeed a survivor when the blogger clearly does not identify as one–and I just had this temper tantrum of a post. Oh well, it is out of my system…mostly. But at the core, to deny someone the way they identify their own self–it is just the utmost in disrespect.
      I’m kinda glad survivor day is over–it seems to cause a ripple or fuss every year. There’s gotta be a better way to acknowledge cancer patients of all stages–wish I knew what it was.

      Like

  3. I am not into labeling. I don’t like when people call me things I don’t identify with. There are people who refer to me as a “warrior” all the time and i call them “warriors” right back. I mean, we are all trying to survive in life, aren’t we? In different ways we all are. A lot of the language used in cancerland bothers me but each patient has the right to do their cancer the way they want. As long as my wishes and opinions are respected, I don’t have a problem. Forcing labels onto people has to stop though.

    Like

  4. Reblogged this on airllusion and commented:
    I too made a choice early in life to not give birth. I’ve had a great satisfying life of step parenting and couldn’t live these children more.
    I’m not a survivor. I’m an adventurer and that was just another great lesson learned.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s