You did it! Now 100 of us have signed up for the Thunderclap on Oct 1! Now we know our social media message will be sent out at 7am PDT/10am EDT/3pm BST. Thanks to everyone who signed up and shared our tweets, posts, and blog messages, urging your friends to join in to inject some reality into the same old tired pink narrative this Breast Cancer Awareness Month!
We still have much to do, of course. Keep urging others to sign up–the more tweets that go out at that moment on Saturday will only make our voices louder–and HEARD! Not only that, but continue to tweet out as many realities of your experience ALL DAY on Saturday. I know, I know. It is so much easier to just nod when someone says something irritating and clueless–because they have not had cancer and just don’t know. Well, rather than rolling our eyes and shrugging–let’s clue them in! Affect some change!
But right now, I’m taking a moment to breathe, to revel in my gratitude to all of you, for joining us on this crazy quest to try and start changing the narrative just a little. It’s true, I am a Curmudgeon–that will never change. But I am gleeful that so many of us share this load–and are willing to shout it out!
I can never thank you all enough!
A few days ago I re-blogged a post from The Sarcastic Boob called Just. The post made me reflective. In my early clumsy attempts to be a “good cancer patient”, I often thought about things that were not so bad for me.
- I was Stage III, not IV.
- My blood count never got so low I needed a transfusion, and it seemed all the other cancer patients I spoke to were getting transfusions.
- I don’t think I ever actually threw up during chemo (waking up from surgery, another matter).
- My hair started coming back almost as soon as I finished Adriamycin; the Taxol seemed to have little impact on it. So, my hair issues were not as bad as others’.
- I did not really suffer any neuropathy. I think one time I had a little loss of sense in my fingertips; I dropped a mug I did not seem to feel (shattering into a million pieces of course). But this did not last long, and I still have feelings in my fingers and toes. In fact, it seems these extremities are more sensitive; I no longer tolerate extreme cold—always were gloves and socks…so much for wearing stylish flats once the temps dip below 55!
- The few food aversions I developed I got over eventually, except for fast food French fries, and I’m better off having that particular aversion.
- And finally, I was estrogen & progesterone negative, I was HER2+, meaning 1) I would not have to put up with taking Tamoxifen for 5 (now 10????) years with all its side effects and baggage and 2) I could have Herceptin every 3 weeks for a year, which is super effective in preventing recurrence (pay no attention to that pesky $8,000-a-pop price tag behind the curtain…). So, I could keep on taking birth control pills, I do not have to go through an early menopause.
I feel guilty about being so “lucky”, especially on that last count. See, the girls in my cancer support group either have kids or want them, and all of them can no longer have them, and the ones that do have them also face the reality of knowing they will not be able to watch them grow up—which I cannot imagine how to handle. And I know it is especially galling for them when the issue of “delaying childbirth/breastfeeding” as a risk factor comes up. It annoys me because I would never do something so idiotic as have a kid just to reduce cancer risk when I am so unsuited to be a mother—I cannot imagine the pain of my friends who really did not even “delay” childbirth (they are all a bit younger than I), and yet they still got nailed with cancer. This is the only situation in which I will feel guilty or apologetic for never wanting kids.
Maybe my “it could’ve been worse” attitude, or my making light of some of the more ridiculous aspects of the past two years, are my way of toning down my complaints, because I certainly have plenty of those. Or maybe it is just my “bah, humbug” curmudgeonly way of counting small pieces of good fortune.