Assumptions About Gratitude

I can tell given recent events I will revisit the thoughts in this post, but I am RE-blogging it until I have time to write a new post. For now, this is a big fat message to people who bitch about all these ungrateful breast cancer patients. I’d bet–and I am so NOT a gambling type–that I give the topic of gratitude a shit ton more thought than most.

Burden of Gratitude

Long before I got cancer, I worked with a woman really into positive energy, healthy eating, and so on. She and I, along with other co-workers, started reading “Simple Abundance”. One daily task suggested by the book was to make a list of 5 or10 things one is grateful for. I found this very easy—I still do it in a limited way. Not a day goes by that I do not think of at least one thing for which I’m grateful, unconsciously, for half a second. It’s just habit.

Shocking, coming from a self-professed Cancer Curmudgeon, I know. But it IS true, I am able to do those cliché things each day—stop and smell roses, focus and be present for a few moments—all that crap. It just so happens my being in the present moment tends to have loud guitar soundtrack, which I’m sure is not what most would consider a peaceful moment—but hey, it works for me. That is a post for another time. The point is, as much so-called negative energy I send out via this blog (I don’t think I do, I’ve merely been accused of this), I’m much more balanced than I seem.

As I’ve said MANY times in various posts, including my About section, I AM grateful to be alive, for the treatment that stopped my cancer, for having an easier time of it than so many I seem to know, to still be in the 70% that has not yet had a metastatic recurrence. See what I did there? Put a positive spin on a terrible stat; see I can do it too!

I am even begrudgingly grateful for all the Pink cult mess that made the research and development for Herceptin possible. I’m all too AWARE (I hate that word) that having the “popular” cancer, the better funded cancer, improves my survival odds.

And there it is: this is where gratitude begins to feel like a burden.

I’ve had a few lightning bolt moments of being struck by this feeling of gratitude as burden over the past few years since I started this blog. I remember watching Lisa Bonchek Adams, Gayle Sulik, and Dr. Love on Al Jazeera a couple of years ago, and seeing the few tweets popping up along the bottom of the screen about the oversaturation of Pink. A few tweets seemed fed up with the ribbon on everything, but the ones that bothered me were the tweets that spoke of the success of the ribbons (a show discussing them is proof of their effectiveness!). The implied message was, don’t knock the ribbon, it worked because now we are aware and anything that brings more awareness is therefore good. There was also the misguided belief that Pink on everything has solely been responsible for breast cancer patients not having to suffer in silence anymore (see Breast Cancer Action’s history lesson).

I get lightning bolt moments of the burden anytime I scroll through comments on ANY criticism of Pink crap and/or sexy awareness ads. It is inevitable that at least one person will angrily comment about the lack of gratitude the breast cancer patient writer is expressing in the critique. The appearance of such a comment is more predictable than the best weather/economy/whatever forecast. And I’m not even going to go into some of the blog posts and articles that have appeared tsk-tsk-ing those of us who criticize Pink. I guess it is just a backlash to the backlash. Again, there is the message, said directly or implied, that anything that brings awareness is inherently good.

(Gonna pause right here and say awareness is not enough, I don’t want to go into that issue here, many others have, and I said my piece about it in Some Word Problems last year.)

But a really major lightning bolt moment is an article in an Australian publication from about a year ago, that I can no longer access, but I’d made notes to myself on it in an earlier draft of this post. The article was about the competition for funding and attention between the different cancers, and how breast cancer gets the most money BY FAR, although it was not nearly as lethal as other cancers. A woman interviewed worked for a breast cancer charity and recounted a story about an interaction she had with some big executive. He told her point blank that his business partnered with her organization because of the body part. He said something kind of crass, like if his wife got breast cancer it would be really hitting where he lives (sorry, cannot remember exact quote, just remember the “where he lives” part).

How many other partnerships were forged for the same reason? Probably more than I want to know.

Yes, I know I’ve benefited, directly and indirectly, from money funneled into breast cancer organizations because of this mentality. Whether it was an executive motivated by selfishness (I am GRATEFUL I am NOT his wife), or one of the local boobs and brews events, I’ve had the best/latest treatment, and received some useful care packages bought with funds raised by things like this. I repeat I AM GRATEFUL for all of this.

But how do I reconcile my gratitude for my benefits with my disgust with the methods used to buy them?

As I’ve mentioned in other posts, sometimes my blog is just me trying to work through my thoughts and emotions about cancer. I have not been able to work through this. I cannot reconcile my gratitude with disgust. The only way I’m dealing with it right now is by knowing that I am capable of experiencing numerous contrasting feelings at once.

When I started writing this post, I wondered if anyone else found gratitude to be a burden. I mindlessly Googled around one afternoon. I ran into the usual stuff—blogs from the self-help set, a quote or two from a historic figure. I stumbled on a HuffPo piecefrom a literature lecturer about gratitude being used almost as a weapon of sorts in some Austen novels. This analysis of a couple of novels actually made sense to me, in a VERY loose way. I don’t think the “you complaining breast cancer patients should just be grateful” finger-waggers are exactly viewing us as inferior, lower-class people (such as in the Austen stories, where the poor, unmarried girl has to benefit from the charity of society people to catch a husband and the stability of marriage).

But there IS a whiff of superiority in the attitudes and tones in these comments. Sometimes I get the impression the obligation of gratitude is being wielded like a ruler in the hands of an old timey teacher. And that ruler is being used to thwack the fingers of naughty breast cancer patients daring to challenge the status quo. And I don’t mean just patients who are blogging and writing articles. I mean anyone who has ever dared to grumble quietly among friends and family, and received that rebuke of ” be grateful” in return.

Perhaps it’s all in my mind. It does seem linked to the subtle, indirect blame ALL cancer patients get. Like: “you didn’t eat right/live healthy/think about sunbeams all day, so now you have cancer and you should just be grateful some smart people invented treatments no matter how those treatments were developed and you have no right to complain about anything because at least you are alive for one more day, and that should be good enough for you.” (Not going down the blame road today, either—see my old post Did You?)

The feeling of gratitude should NOT be a burden; that’s not what all the self-help mumbo jumbo is about. Gratitude is supposed to help one on the path to happiness. Well, that’s not happening here for me. What should I do about that? I mean, besides trying to work it out here on this blog?

I still do not really know. But I do know this: I felt increasingly disturbed by the Pink (by that I mean the be a happy warrior rah rah stuff, the sexualization, the pinkwashing, all of it) as I began treatment and hit a zenith right after treatment ended. I felt this disturbance before I ever found others with the same thoughts via social media. Every single day tons of women get this diagnosis. Some of them will go all in to embrace the Pink. But MANY others will have an experience similar to mine.

I don’t want my experience for these future breast cancer patients. Just because it “worked so far” (again, that is debatable, since, you know, there is still all this cancer out here), does NOT mean it will continue to work. Some would say, if it ain’t broke don’t fix it.

But guess what? It is broken. When gratitude makes me feel like shit, something is definitely broken.

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Author: Cancer Curmudgeon

Oct 2010 diagnosed with Stage 3, HER2+ Breast Cancer. Completed treatment Jan 2012. Waaaaaay over pink. Applying punk rock sensibility to how I do cancer.

5 thoughts on “Assumptions About Gratitude”

  1. I completely agree with what you’ve stated about the burden of gratitude. It is a a way to keep the bad feelings out of view.

    It’s kind of like people saying, “Women should be glad they’re objects of lewd catcalling. It means they look good.” No mofo, it does not. It merely means that someone is using that woman to further their own agenda. It does not mean that the catcalling made her beautiful.

    Liked by 1 person

    1. Exactly. I’m very alarmed by the pushback I see when we criticize Pink industry madness–especially the threats to withdraw support if we do not conform to this idea of gratitude (See No Participation Award for You post). For some people, it won’t matter how gently we say, do this thing instead, that yields better support results–they will always react angrily.

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  2. Thank you for putting this out. Especially that it is possible to feel multiple things simultaneously.
    For me the issue of feeling like shit come’s up when SHOULD is attached to gratitude. It pisses me off. Seriously, guilt and gratitude don’t mix – like drinking and driving- try it and there is bound to be a real mess on the highway. It seems to me that when ever there is an effort to enforce specific right and wrong rules attached to which feelings are okay to have, that for Gods sake it is really NOT OKAY.
    The whole pink debate is squeezing/judging from both directions. Should is toxic, which ever direction it comes from.
    Focusing on gratitude for me is a discipline that helps keep me from falling off the deep end. And when someone tells me, often my mother, that “You should be grateful, there are others that have it worse.” While I am struggling with something, It has nothing to do with gratitude, and everything to do with invalidating and shaming.
    I say take gratitude back. Not out of some self-help frenzy, and definitely not out of obligation or guilt. But because the sweetness of focusing on gratitude in those precious moments that it is rising from within can change everything.
    Xo
    Iris

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    1. Thank you. So many words and their various meanings have become twisted for me since cancer. Such as hope–ugh. The notion of gratitude–realizing I have it even accused of not having it, has made things confusing. Sometimes I think “you should be grateful” is just a thing people say without thinking deeply about the issue at hand. I’ve witnessed that quite too much of late. Anyway–thanks for stopping by!

      Liked by 1 person

  3. I am in agreement with you. I’ve been giving this topic a lot of thought lately. All these expectations feel like burden to me. It also confirms the inability of some people to accept reality. It’s too uncomfortable for them (even to those with shared experiences). Perhaps some of these patients who critic want to hold on to their denial as long as they can. But to judge/accuse another patient because of the difference in perspective, or I should say, for pointing out facts, is wrong. (And yes, there is a tone of superiority!) There is a real problem with the divisions in cancerland and nothing will be accomplished until everyone starts to see the big picture. And then there are those who never dealt with cancer who know very little about our reality but who also refuse to get educated.

    This topic is sort of parallel to the idea of having “hope”. Like you’ve mentioned before, hope is complicated, especially when things don’t evolve or improve for the better.

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